About Us
Our Story, Our Mission, Our Hope
Connor was diagnosed with Duchenne Muscular Dystrophy at age two. His diagnosis changed our world — and motivated us to build a community of support, advocacy, and hope for every family facing Duchenne.
After Connor’s diagnosis, our family committed to learning everything we could about Duchenne — the treatments, the challenges, the impact on daily life, and the support families need at every step. We navigated specialists, evaluations, accessibility changes, therapies, and the emotional weight that comes with rare disease care.
Through it all, Connor’s strength, humor, and resilience continue to inspire us. He reminds us that joy can exist alongside difficulty — and that families facing Duchenne deserve support, community, and hope.
Our Mission
Connor’s Fight brings communities together in the fight against Duchenne Muscular Dystrophy through awareness, advocacy, family support, and by funding life‑changing research. Connor envisions a world where every child and family affected by Duchenne Muscular Dystrophy has access to the resources they need, a community that stands with them, and the promise that no family will ever fight alone.
Our Vision
A world where every child with Duchenne has access to life‑changing treatments, every family feels supported, and where early diagnosis, specialized care, and groundbreaking research are within reach for all.
Our Values
These principles guide everything we do — and reflect the heart of Connor’s Fight.
Community
No one fights alone. We unite families, neighbors, and supporters to uplift one another.
Advocacy
We speak boldly for children living with Duchenne and push for meaningful change.
Compassion
We support families with empathy, dignity, and understanding.
Research
We invest in scientific progress that brings real, life‑changing impact.
Hope
We believe in a better future for every child affected by Duchenne.